Saturday, January 21, 2017

Colonoscopy Results

Well, my colonoscopy went reasonably well. My colon is clear, good, not one polyp or anything. My upper GI tract however... not so much.

According to my gastroenterologist, my entire upper GI tract (esophagus, stomach, and duodenum) is inflamed, and I have numerous ulcers. They took multiple biopsies from each location and I should have the results in about 2-3 weeks. While we don't have a definite diagnosis yet, my doctor believes I have gastroduodenal Crohn's disease. If he's right, I suppose we'll be starting another journey down that road as soon as we get the results.

I'm trying to get more into vlogging, as that seems to be the thing lately. They're not the best. I clearly need to invest in a tripod or something. But there here. This one gives a little more info on how my procedure went. Enjoy!


Saturday, January 14, 2017

Colonoscopy Prep

So... back in December I met with my gastroenterologist for a regular appointment, as I was overdue for my colonoscopy. In addition, he wanted to review the results of the labwork done on the kidney stone I had back in late October-ish. Ends up, it's "the bad kind" of kidney stone.

So lucky me gets to have a scope put down my throat to check my upper GI at the same time as my colonoscopy. Fun fun.

Here's a video I made as I prepped for the procedure. I'm new at this whole vlogging thing, so cut me a little slack (helpful tips are appreciated though). Enjoy!


Wednesday, November 9, 2016

Kidney Stone

I recently had my first, and hopefully only, kidney stone.

I would like to start by apologizing to anyone in my life who may have previously had kidney stones and for whom I did not show appropriate sympathy and support.

I had no idea it was even possible for them to be so bad. No idea.



Here’s my experience:

*******************

On Friday, the 21st I awoke with a slight pain in my right lower quadrant. Pain level 1-2. Annoying, but nothing more. I was expecting my monthly visitor any day, so my initial thought was some weird sort of cramp.

My husband & I had plans to attend a Homecoming Alumni Reunion for my university, which was also supposed to be our fancy night out for our anniversary. He took a vacation day from the fire house. We had this booked for months and I was really looking forward to it.

By the time we left my pain was maybe the 3 – 4 range. Worse. Still annoying, but not bad enough for me to even consider changing our plans.

During dinner, the pain escalated to the 6-7 range. While listening to the speakers, I contemplated how much longer I could stay. I really wanted to hear a few of them that hadn’t been up yet, and there were old friends I spied across the room, but hadn’t had a chance to see yet. But I couldn’t ignore the pain, and I told Jason we needed to leave.

At this point I’m still thinking maybe we just go home and I lie down. But in the car the pain worsened. I tend to be a “wait it out” kinda gal, but I tried to think of what I would tell my sister if she called and asked me what to do.

“I think you should take me to the hospital.”

And so we went. As we waited on triage, my pain intensified. 8…9… I’m not one to take the pain scale lightly, it will be rare for me to tell you my pain is ever over a 5 or 6. But that day? I hit a 9.

They gave me some pain meds to dull the pain while trying to assess my condition. Most of us seemed to think it was likely appendicitis. I think this was mostly because my pain was exclusively in my belly, no back pain at all, which is common with kidney stones. Also, ends up if you’re a man and have right lower quadrant pain it’s pretty much either appendicitis or kidney stones. If you’re a woman though? The doctor listed off about 20 different possibilities: appendicitis, kidney stones, ovarian cyst, ectopic pregnancy, etc, etc, etc.

We were fairly certain of the answer though once they got my urine sample. I could tell by looking at it that something wasn’t right. Sure enough, there was quite a bit of blood in the sample. Most likely diagnosis changed from appendicitis to kidney stones. I was sent off for a CT scan which confirmed I had a 7.5 mm kidney stone lodged in my ureter (the tube that connects the kidney to the bladder).

Apparently this is considered a “huge” kidney stone. I got lots of sympathy and better pain meds after that. Truth. I was also admitted.

I awoke the next morning feeling much better. Pain was almost non-existent, at a 1, maybe a 2. I could definitely feel that something was going on, but it wasn’t bad at all. The nurses seemed relieved, but a little confused. An X-ray later that morning explained why my pain was all but gone: the stone had floated back up into the kidney. No longer lodged in my ureter, it no longer caused pain. In fact, by the end of the day my pain was completely gone. They discharged me Saturday evening with some Vicodin to take as needed and an appointment to have a lithotripsy (using sound waves to break up the stone) at the urologist’s outpatient facility on Monday.

Monday I headed to the outpatient facility. It was not a good experience. Registration went fine, I suppose, and getting set up. Met the doctors. The procedure went well. But coming out of anesthesia? Well, it always takes me a long time. That day was no exception. I don’t know how long really. I know one of the nurses was extremely rude, ignored my cries of both pain & nausea, and refused me pain meds because I “just need to calm down”. I eventually told her off, she left, and I got another nurse. Funny thing, if you actually treat your patient’s pain & nausea, and treat them with a tiny bit of compassion, they are able to calm down much sooner, and start to come around better. Even so, even with a nicer nurse that addressed my needs, it was still made very clear to me & my husband that I was not coming out of the anesthesia quickly enough to suit them. This was never made more clear than when I was sent home in a hospital gown, because I wasn’t able to dress myself yet.

You read that right. They asked if I could stand up and get dressed, I told them no. I vaguely remember kind of falling back onto the bed as they stood me up. They put me in a wheelchair, handed my husband a bag with my clothes in it, and wheeled me out to the sidewalk in front of their building in a hospital gown and panties. Waited for Jason to pull the van around, and loaded me in the car that way. Nice, huh?

Over the next two days I passed bits of stone. Tiny. Like sand. Honestly didn’t even feel them most of the time and only knew because they had asked me to strain my urine and keep the pieces.

That Thursday I had a follow up appointment scheduled with my primary care physician. I had been feeling better, so decided to drive myself. At this point, it was just Jena & myself. My parents kept Jillian for me while I was recovering, and we thought if anything Jena would be a helper for me. Jason went back to the firehouse for the first time in three shifts.

I had mild pain that morning, but nothing bad, and nothing more than I was expecting. I had had pain off & on since the lithotripsy anyway. However, on the drive home from the doctor, my pain rapidly escalated. It’s kind of ironic. Went to the doctor, told him I was doing well, pain was minimal, everything looks good, then on the drive home my pain skyrockets. It was difficult to drive.

Got us home and laid down. Called Jason & my mom to let them know. Called Jason again and told him to head home please. He’s an hour away.

My pain goes up even more. I start vomiting from the pain. My poor little eight year old is bringing me a bucket to puke in and listening to me moan & wail in pain. I call Jason back and ask how far away he is. Twenty minutes. I beg him to hurry.

Honestly, when I knew he was that far away I probably should have called 9-1-1. As the wife of a first responder, I don’t take that lightly, but I really should have. The pain was that intense.

I called Jason back. How far away? Five minutes. I tell Jena to get her shoes on and get my purse. I slip on some flip flops, grab a bowl for vomit, and stumble out to the minivan. We wait for Jason to arrive. He pulls in, jumps into the van, and we take off.

Things become a blur at this point. I know I vomited a few more times on the way to the hospital. I know Jason signed all the forms at the emergency room because I wasn’t able. I don’t remember going for any tests, but I must have, because at some point we were told that a 2x3.5 mm piece of my original stone had lodged in my ureter. Again.

Got some good pain meds, fell asleep at some point, was admitted at some point. Slept off & on.

One of the urologists came to see me the next morning. He gave me my options:
·         Be discharged with some better pain meds and try to pass the stone on my own, not knowing how long it would take
·         Stay in the hospital and have it removed surgically

I chose the latter. Having already been hospitalized twice for this thing, I didn’t want to be discharged only to end up back in the hospital after another day or so.

Surgeon came to see me later, and surgery was scheduled for that evening.

I’m so glad I did. After the surgery, when the surgeon came to speak to my family, he informed them that my ureter narrowed to an extent that it would have been physically impossible to pass the stone on my own. He removed the stone, looked around to confirm there were no more stones, and inserted a stent to help keep my ureter open while it was healing.

I again took a long time to come out of anesthesia. This time I was at the hospital though, so no one kicked me out. I was in recovery for roughly three hours. I vaguely remember the nurse telling me over and over to take deep breaths. I think my pulse ox kept going low.

By the time I got back to my room it was after 9pm. Pain was minimal. Discomfort from the stent was pretty high, but that was to be expected. And I had to pee literally every 20-30 minutes. Also to be expected, although the nurses did inform me that I actually do have a small bladder. Fun. By the morning I had managed to stretch out time between bathroom breaks to 45 minutes.

Was released the next day and told that I could expect “mild discomfort” from my stent, and zero restrictions on my daily life. Free to resume life as normal.

{{ insert hysterical laughter }}

The discomfort from this stent was awful. Awful. Horrible. The worst feeling you can possibly feel without crossing over into pain. I felt it inside me 24/7. There was no way to get comfortable. None. By basically living in a recliner I was able to get comfortable enough to make it tolerable. That’s about it. Urinating was the worst. I was able to stretch it out to about an hour between bathroom breaks, right at two hours if I was sleeping. A little less than an hour if had recently eaten.

Truly a horrible experience. I have no idea how they can call this “mild” discomfort, or how they can say you can resume normal life. I kept think how if I were still working outside the home I would be forced to either drain my vacation time or take as much Vicodin as allowed and try to muddle thru the work day, and still not sure it would be possible. Seriously, awful.

Originally my doctor wanted me to have the stent for 10 days, and remove it under general anesthesia. After my second day home, I called the nurse and talked with her about how much discomfort I was having. She assured me it was normal (so, again, why do they tell you it’s “mild” discomfort?!?), but said she’d talk to the doctor. She called me back the next day. He agreed to remove it after only 7 days and under a local anesthetic.

Yay!!!

I powered thru a few more days, then went in for the removal.

It was so easy!

Seriously. From the time they started until the time they finished was only seven minutes. It took longer for the nurses to take my vitals and get me checked in as a same-day surgery patient than it took to do the procedure. They used a local anesthetic in the form of a numbing cream, and consequently what I felt was essentially as much discomfort as a yearly gynecological visit. Some pressure, little bit of a pinching feeling, little more pressure, done.

I honestly have no idea why they would put anyone under general anesthesia for this (assuming they had no other complications). I’ve heard it can be a bit more uncomfortable, and possible a little painful, for men because they have a longer urethra, but I’m still not convinced it would be worth the risks of undergoing general anesthesia.

I immediately felt much better. There is still some (actually) mild discomfort when I urinate, or when I stretch. I occasionally get a crampy feeling in the general bladder area, it gets worse if I’ve been walking, better when I sit. Other than that, I feel back to normal. It was an amazing difference having the stent out. I feel like myself for the first time in the past two weeks.

{{ side note: I’m currently watching Parks & Recreation via streaming Netflix, and this episode Ben just got diagnosed with kidney stones. Irony. Ha. }}

On a side note, I’ve been struggling with daily gastrointestinal problems for over six months. Every day. It got to the point where no over-the-counter meds were controlling it. Have an appointment with a GI in two weeks for some testing because my primary care couldn’t figure out what was going on, all his tests were normal. Since this kidney stone issue came up, I’ve had ZERO issues. I think it’s still too soon to tell, but I’m hopeful that maybe somehow my gastro issues were related to my kidney stones and now everything will be resolved. Crossing my fingers!

Thanks for checking in everyone! Hope you never, ever have kidney stones!
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